Quality of Life in Adults with Epilepsy: A Cross-Sectional Study in the District of Cartagena de Indias (Colombian Caribbean)
Keywords:
Epilepsy, Quality of life, Mental Health, Social funtioning, Anticonvulsant medications, QoLIE-10Abstract
Objective: To establish the level of health-related quality of life in adult individuals with epilepsy at an institution in Cartagena. Methods: This research was conducted with a cross-sectional approach. The study population consisted of adults aged 19 to 60 years with a diagnosis of epilepsy but without significant cognitive impairments or epilepsy surgeries, and with no contraindications for completing the scale. The QOLIE-10 (Quality of Life in Epilepsy Inventory-10) was used as a reference to assess the quality of life and identify potential deficiencies. Results: The total evaluated population was 139, with 79 males and 60 females, indicating that 56.8% of the population were male. In the study group, 71.9% belonged to stratum 1, 20.9% to stratum 2, 6.5% to stratum 3, and one participant from stratum 6, representing 0.7%. The average age was 20 years, with a higher percentage of singles (33.8%) and unemployed individuals (47.5%). Regarding quality of life, 43.9% responded that things had gone "QUITE WELL" with a frequency score of 61, and 45.3% reported things going "WELL AND BADLY EQUALLY" with a frequency score of 63. Conclusion: The majority of participants consistently feel full of energy and only occasionally express feeling discouraged or sad. Anticonvulsant medications do not pose problems for their mobility, and they do not experience difficulties in memory, work, or social life. They rarely or never experience physical issues caused by the medications or mental problems provoked by anticonvulsants. They are not overly worried about experiencing a seizure in the last four weeks, despite the current pandemic situation.
References
¿Que es la epilepsia? Definición y epidemiologia de la epilepsia [Internet]. [cited 2019 Oct 22]. Available from: https://www.apiceepilepsia.org/que-es-la-epilepsia/que-es-la-epilepsia-definicion/
Beatriz Á, Salazar P, Lillia Hernández López D. Epilepsia: aspectos básicos para la práctica psiquiátrica Title: Epilepsy: Basic Aspects for the Practice of Psychiatry. Vol. XXXVI, Rev. Colomb. Psiquiat. 2007.
Calidad de Vida. Evolución del Concepto y su influencia en la investigación y la práctica [Internet]. [cited 2019 Oct 22]. Available from: http://campus.usal.es/~inico/investigacion/invesinico/calidad.htm
Calidad De Vida: OMS: Calidad de Vida (2005) [Internet]. [cited 2019 Oct 22]. Available from: http://vidacalida.blogspot.com/2010/12/oms-calidad-de-vida-2005.html
Fabelo J, Iglesias S. Psychosocial impact of the illness in quality of life in patients with epilepsy. Salud Soc. 2010;1(2):89–100.
Viteri C, Codina M, Cobaleda S, Lahuerta J, Barriga J, Barrera S, et al. Originales Validation of the Spanish version of the QOLIE-10 quality of life in epilepsy questionnaire.
De F, Humana M, De Posgrado U, Jose A, Delgado C, Asesor R, et al. UNIVERSIDAD NACIONAL MAYOR DE SAN MARCOS “CALIDAD DE VIDA DEL PACIENTE CON EPILEPSIA. INSTITUTO NACIONAL DE CIENCIAS NEUROLOGICAS JUNIO 2006-DICIEMBRE 2007” TESIS Para optar el Grado Académico de Magister en Neurociencias. 2015.
La epilepsia y el gran desafío que enfrenta América latina - CONSULTORSALUD [Internet]. [cited 2019 Oct 22]. Available from: https://consultorsalud.com/la-epilepsia-y-el-gran-desafio-que-enfrenta-america-latina/
Epilepsia: mucho más que convulsiones [Internet]. [cited 2019 Oct 22]. Available from: https://www.minsalud.gov.co/Paginas/Epilepsia-mucho-mas-que-convulsiones.aspx
Flórez Bedoya A, María •, Arias Valencia M. Viver com epilepsia: significados construídos por pessoas acometidas pela doença Living with epilepsy: meanings constructed by people with the disease.
Tulio M. Epilepsia en Latinoamérica Liga Internacional contra la Epilepsia (ILAE) y el Buró Internacional por la Epilepsia (IBE).
Amudhan S, Gururaj G, Satishchandra P. Epilepsy in India I: Epidemiology and public health. Ann Indian Acad Neurol [Internet]. [cited 2019 Oct 22];18(3):263–77. Available from: http://www.ncbi.nlm.nih.gov/pubmed/26425001
Gholami A, Salarilak S, Lotfabadi P, Kiani F, Rajabi A, Mansori K, et al. Quality of life in epileptic patients compared with healthy people. Med J Islam Repub Iran. 2016;30(1).
Afrontamiento familiar a la epilepsia [Internet]. [cited 2019 Oct 22]. Available from: http://scielo.sld.cu/scielo.php?script=sci_arttext&pid=S0864-34662013000300004
Palacios E, Vicuña M, Ac P, Jp V. (No Title). Vol. 31, Acta Neurol Colomb. 2015.
Rehabilitación en Salud y Calidad de Vida relacionada con la salud | García | Revista Colombiana de Medicina Física y Rehabilitación [Internet]. [cited 2019 Oct 22]. Available from: http://www.revistacmfr.org/index.php/rcmfr/article/view/44
CALIDAD DE VIDA EN LA EVALUACION Y PLANIFICACION DE PROGRAMAS: [Internet]. [cited 2019 Oct 22]. Available from: https://campus.usal.es/~inico/investigacion/jornadas/jornada1/confer/con2.html
Lineamientos deteccion de epilepsia [Internet]. [cited 2019 Oct 22]. Available from: https://www.minsalud.gov.co/sites/rid/Lists/BibliotecaDigital/RIDE/VS/PP/ENT/lineamientos-deteccion-epilepsia.pdf
Lineamientos para la promoción.
Dimensión convivencia social y salud mental.
Ley 1616 de 2013 - Salud Mental [Internet]. [cited 2019 Oct 22]. Available from: https://www.asivamosensalud.org/politicas-publicas/normatividad-leyes/salud-publica/ley-1616-de-2013-salud-mental
LEY 1414 DE 2010. 1414.
Rehabilitación Integral [Internet]. [cited 2019 Oct 22]. Available from: http://www.rehabilitacionintegral.cl/
Testa MA, Simonson DC. Assessment of quality-of-life outcomes. Vol. 334, New England Journal of Medicine. 1996. p. 835–40.
Ma Mercadé Cerdá J, Sancho Rieger Presidente de la SEN José Ángel Mauri Llerda J, Javier López González F, Salas Puig X. (No Title).
Excitabilidad neuronal y epilepsia | NeuroWikia [Internet]. [cited 2019 Oct 22]. Available from: http://www.neurowikia.es/content/excitabilidad-neuronal-y-epilepsia
Epilepsia: Aspectos Clinicos Y Psicosociales - Carlos Medina Malo - Google Libros [Internet]. [cited 2019 Oct 22]. Available from: https://books.google.com.co/books?hl=es&lr=&id=ocSNl4uMiRYC&oi=fnd&pg=PA109&dq=(EPILEPSIA+ASPECTOS+CLINICOS+Y+PSICOSOCIALES+MEDINA+MALO&ots=0ftg87iaXP&sig=J1MWX4qO0gUPRaCsQ5WmPCdCFp0#v=onepage&q=(EPILEPSIA ASPECTOS CLINICOS Y PSICOSOCIALES MEDINA MALO&f=false
Calidad de vida - EcuRed [Internet]. [cited 2019 Oct 22]. Available from: https://www.ecured.cu/Calidad_de_vida
(Calidad de vida) [Internet]. [cited 2019 Oct 22]. Available from: http://files.sld.cu/cimeq/files/2012/06/imq-2012-4-1-244-259-calidad-de-vida-y-percepcion-de-salud-en-mujeres-de-mediana-edad.pdf
(Definición de bienestar subjetivo en adultos jóvenes profesionales chilenos. Un estudio con redes semánticas naturales) [Internet]. [cited 2019 Oct 22]. Available from: https://www.redalyc.org/pdf/4235/423539425006.pdf
Urzúa A. Calidad de vida relacionada con la salud: Elementos conceptuales.
(No Title) [Internet]. [cited 2019 Oct 22]. Available from: https://www.minsalud.gov.co/sites/rid/Lists/BibliotecaDigital/RIDE/VS/PP/abc-salud-mental.pdf
Mental S. Invertir en [Internet]. [cited 2019 Oct 22]. Available from: http://www.who.int/mental_health
Papeles del Psicólogo [Internet]. [cited 2019 Oct 22]. Available from: http://www.papelesdelpsicologo.es/resumen?pii=817
Alcaide J, Vanesa G, Calderón G, Benavides Orgaz M. FÁrmacos anticonvulsivantes.
Medicamentos anticonvulsivos para niños y adolescentes - HealthyChildren.org [Internet]. [cited 2019 Oct 22]. Available from: https://www.healthychildren.org/Spanish/health-issues/conditions/head-neck-nervous-system/Paginas/seizure-medications-for-children-teens.aspx
Cognitive effects of antiepileptic drugs [Internet]. [cited 2019 Oct 22]. Available from: http://www.scielo.org.co/scielo.php?script=sci_arttext&pid=S0121-07932009000400004
Anexo III MEDIDA DE LA CALIDAD DE VIDA EN LA EPILEPSIA – Web del Grupo de Estudio de la Epilepsia [Internet]. [cited 2019 Oct 22]. Available from: http://epilepsia.sen.es/?p=90
QUALITY OF LIFE IN EPILEPSY-QOLIE-31 (Version 1.0) [Internet]. 1993 [cited 2019 Oct 22]. Available from: www.epilepsy.com,
NEURONAS Y NEUROTRANSMISORES.
Solís H, López-Hernández E, Cortés-Gasca D. La excitabilidad neuronal y los canales de potasio. Vol. 13, Arch Neurocien (Mex). 2008.
MIGRACALM® - Glossary [Internet]. [cited 2019 Oct 22]. Available from: http://migracalm.net/eng/glossary.html
GUIA DE ESTUDIO [Internet]. [cited 2019 Oct 22]. Available from: http://www3.uah.es/bioquimica/Tejedor/bioquimica_ambiental/tema12/tema 12-sinapsis.htm
Introducción a los accidentes cerebrovasculares - Enfermedades cerebrales, medulares y nerviosas - Manual MSD versión para público general [Internet]. [cited 2019 Oct 22]. Available from: https://www.msdmanuals.com/es-co/hogar/enfermedades-cerebrales,-medulares-y-nerviosas/accidente-cerebrovascular-acv/introducción-a-los-accidentes-cerebrovasculares
Anomalías congénitas [Internet]. [cited 2019 Oct 22]. Available from: https://www.who.int/es/news-room/fact-sheets/detail/congenital-anomalies
Convulsiones: MedlinePlus enciclopedia médica [Internet]. [cited 2019 Oct 22]. Available from: https://medlineplus.gov/spanish/ency/article/003200.htm
La dependencia personal, ¿qué es? | +QCuidar [Internet]. [cited 2019 Oct 22]. Available from: https://masquecuidar.com/consejos/la-dependencia-personal-que-es
Bloques de independencia [Internet]. [cited 2019 Oct 22]. Available from: http://www.waece.org/webpaz/bloques/independencia.htm
OMS | Discapacidades. WHO. 2016;
Salud pública [Internet]. [cited 2019 Oct 22]. Available from: https://www.minsalud.gov.co/salud/publica/Paginas/salud-publica.aspx
(No Title) [Internet]. [cited 2019 Oct 22]. Available from: https://www.minsalud.gov.co/Normatividad_Nuevo/Ley 1751 de 2015.pdf
Declaración de Helsinki de la AMM – Principios éticos para las investigaciones médicas en seres humanos – WMA – The World Medical Association [Internet]. [cited 2019 Oct 22]. Available from: https://www.wma.net/es/policies-post/declaracion-de-helsinki-de-la-amm-principios-eticos-para-las-investigaciones-medicas-en-seres-humanos/
RESOLUCION 8430 DE 1993 [Internet]. [cited 2019 Oct 22]. Available from: https://www.minsalud.gov.co/sites/rid/Lists/BibliotecaDigital/RIDE/DE/DIJ/RESOLUCION-8430-DE-1993.PDF
Anexo III MEDIDA DE LA CALIDAD DE VIDA EN LA EPILEPSIA. DISPONIBLE EN: http://epilepsia.sen.es/?p=90#:~:text=Las%20escalas%20QOLIE%2D89%20y,tratamiento%20quir%C3%BArgico%20de%20la%20epilepsia.
El ejercicio como estrategia terapéutica en la epilepsia: revisión bibliográfica. Y. Cartagena, D.C. Cardona-Gallón, S.P. Isaza, L.D. Ladino Revista 71(01) Fecha de publicación 01/07/2020 DISPONIBLE EN: https://www.neurologia.com/articulo/2020028
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